Neurofibroma marriage, hiding it leads to divorce? A comprehensive overview of the genetic disease controversy

Have you watched JTBC's 'Divorce Consideration Camp'?
The story of a married couple was revealed, causing a huge reaction.
My husband did not inform me about a genetic disease called neurofibromatosis before we got married.
It was the story where my wife demanded a divorce after the disease was inherited by the children.

 

The children inherited it.

However, my husband didn't say anything before we got married.
I'm so angry that you hid something this important.

 

Since the broadcast, there has been a heated debate among viewers.
"This is betrayal" vs "Is that illness such a big problem?"

 

So today, I would like to organize the story surrounding the controversy at the center, the neurofibroma marriage.

 

 

 

 

What are the symptoms of neurofibroma, and what kind of disease is it?

Neurofibromatosis (NF) is a rare genetic disorder characterized by benign tumors developing in nerve tissue.
The most common type is Type 1 Neurofibromatosis (NF1), and rarely, Type 2 (NF2) also exists.

 

 

✅ Major symptoms of NF1 type

Six or more brown spots called 'Café-au-lait spots' appear on the skin.
Pigmentation resembling freckles in the armpits and groin
Dozens to hundreds of soft, tumor-like nodules felt on the skin (cutaneous neurofibromas) occur.
- Scoliosis, bone deformities, leg length discrepancy, etc.
Visual impairment caused by optic nerve tumor
Pain, sensory loss, and motor impairment caused by nerve compression
- Rarely accompanied by epilepsy, attention deficit, and learning disabilities

 

✅ Major symptoms of NF2 type

 

Schwannoma develops around the auditory nerve, leading to hearing loss, tinnitus, and balance disorders.
- Meningioma, brain tumors, and other central nervous system tumors
- Blurred vision, cataracts, chronic headaches

 

 

 

Neurofibromatosis symptoms NF1 symptoms begin in childhood, and
NF2 often manifests as hearing problems in the early teens to early twenties.

 

 

🧬 Neurofibromatosis inheritance, should I tell my partner before marriage?

 

The main reason why neurofibromas have become such a controversy is precisely because of their hereditary nature.
Both NF1 and NF2 are autosomal dominant hereditary diseases.

If one parent is the patient, there is a 50% chance that neurofibromatosis will be inherited by the child.

 

But don't worry even if there is no family history.
Approximately 30 to 50% of all patients develop the condition due to genetic mutations.

In other words, it could be a case that occurred later in life rather than something inherited from their parents.

 

However, if the person was already suffering from it,
Before getting married, it is necessary to discuss this and respect the other person's right to choose.

In particular, genetically inherited children may experience more severe symptoms than their parents in some cases.
This issue is not just about 'health information' but about the 'conditions of life.'

 

It's not something else; it's something inherited by children.

 

 

Genetic disorders that need to be shared before marriage

 

The genetic probability of neurofibromatosis is also high beyond genetic inheritance.
The illnesses that require consultation before marriage are as follows

 

Neurofibromatosis NF1/NF2 – 50% inheritance rate
Huntington's disease – neurodegenerative, 50% genetic probability
- Da Nang Shin – Kidney function decline, 50% genetic rate
- BRCA hereditary breast cancer – up to 80% incidence in women
Cystic fibrosis – lung and gastrointestinal diseases, 25% genetic probability

 

Although there is no legal obligation, giving the other party a chance to choose is
Perhaps it is a fundamental trust and responsibility.

 

 

 

 

💊 Neurofibroma marriage, so should I go ahead?

 

There is recent hopeful news in the field of rare diseases.
A new drug called Selumetinib is one of them.

 

68% of patients experienced a reduction of more than 20% in tumor size
- Domestic clinical trial: Tumor size reduction in 98.9% of patients
- Symptom relief of neurofibromas, reduction of skin tumors, improvement in quality of life

 

It is now an era to abandon the mindset of "it's over because it's inherited."
With accurate diagnosis and consistent treatment, you can fully enjoy your daily life.

 

 

 

🔍 Neurofibroma marriage: If I hid it, is divorce okay?

 

The act of hiding itself can be a bigger problem than the illness.
Especially if it is a hereditary disease,
You must have needed serious conversations and consultations before getting married.

 

However, we cannot definitively say that divorce is the answer just because it was hidden.
There is a possibility of treatment, and there is room for mutual understanding and dialogue.

The controversy over neurofibromas and marriage is not just a simple medical issue.

It's a complex story involving trust, choice, information sharing, and family planning.

What choice would you make?