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(Helpful Tip) Purpura

As I post this, I realize I have two sons and have suffered from many illnesses I had never heard of before. When my older child was in third grade of elementary school, suddenly a spot appeared on his ankle. At the same time the spot appeared, he said his stomach hurt. Since stomach aches are common when raising children, and because he had constipation, I told him to go to the bathroom and gave him some stomach medicine.

But I was in pain all night and it subsided, so I went to the hospital the next day, and they said there was nothing abnormal. However, the child continued to be sick... even after taking medicine, there was no significant effect... The next day, we went to a larger hospital again. From that point on, spots appeared on the ankle, and the doctor said it looked like purpura. What is purpura??

When they explained it to me, I didn't understand a word. They said it was because of a problem with the immune system... I felt like I got hit in the back of the head. Since her immune system developed late, she was born and kept catching colds. So, to boost her immunity, I fed her a lot of different things... We received a prescription and went home, but the spots kept spreading and getting darker, and her stomach kept hurting. The stomach pain was the biggest issue. She was in so much pain.

Based on a scale of 1 to 10, 10 is the worst. The medication had little effect. Since I have a young child, hospitalization was difficult, so I chose outpatient treatment. I stayed up all night massaging my son's stomach, but it didn't help much; I had nothing else to do. In the morning, I sent the younger child to school and went to the hospital for an IV drip. The medication to soothe the stomach pain... painkillers, right? After two hours of infusion, the pain slightly subsided. Then I went back home to rest and took medication. The next day, the pain returned. Strangely, the effect of the medication didn't last a full day. So I went back to the hospital for another IV drip, then returned home... After about ten days of this, the stomach pain improved significantly. So I continued taking medication and visited the hospital every 2-3 days. The spots gradually darkened and spread up to the hips. It looked very disgusting. Sometimes they burst and scabbed over. I was told not to touch them. They said it might be itchy, but luckily, there was no itching. I was very fortunate.

The spots last for more than a month. They gradually increase in number and become darker, then when they disappear, their color gradually lightens and fades away.

The child was under a lot of stress every day because of their swollen legs. The mom asked, "What if my legs stay like this forever?" and I felt very upset. I told her that it would never happen and reassured her every day, saying that I was working on it. Fortunately, since it's winter, she's wearing long clothes, so I made sure she couldn't take them off, and I quickly helped her wash so she wouldn't see her legs for too long.

Only after time passes and the clear signs disappear do I feel at ease as a mother.

Henoch-Schönlein purpura has many causes, and it can't be pinpointed to just one. There are also many treatment methods and tests. Luckily, the child only has stomach pain symptoms, should I say that's fortunate?

The time that lasted over a month was really too long, but I am only left with gratitude for my son who endured it well^^

(Helpful Tip) Purpura

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Comments 14
  • Profile Image
    김경섭
    처음 알았네요, 맘 고생 하셨겠어요
    • Profile Image
      정마담
      Author
      아이가 맘고생많았어요.
      흉될까 걱정많았죠
  • Profile Image
    햄찌
    아이랑 어머니랑 넘 고생하셨겠어요 ㅠㅠ
    점점연해졌다니 다해잉에요
    • Profile Image
      정마담
      Author
      지금은 흔적도 없어요.
      건강하게 잘 크고 있답니다^^
  • Profile Image
    구름방울
    첨 들었어요 저도 아이 키우는데 글 읽는동안.맘이 아팠네요. 아이들 아프면 무엇때문인지 감이 안올때가 가끔 있는데 그럴땐 정말 불안하더라구요
    좋아졌다니 정말 다행입니다. 
    • Profile Image
      정마담
      Author
      불안하죠.
      원인과 치료가 확실해야 조금이나만 안심되는데.
      한고비 넘긴기분이었어요
  • 찌니
    와 저도 첨 알았네요 
    가려웠으면 더 견디기 힘들었을텐데 다행이네요 ㅠ
    • Profile Image
      정마담
      Author
      진짜 안가려워 넘 다행이었어요.
      생각만해도 끔찍하네요
  • Profile Image
    네바이넙
    아이고 고생많으셨네요. 그래도 많이 좋아졌다니 다행이네요.
    병원다니며 잘 관리하는게 중요하군요.
    • Profile Image
      정마담
      Author
      ㅅ하나둘 없어지기 시작함 다 나은거더라고요.
      지금은 흔적도 없어요
  • Profile Image
    수퍼마덜
    어머!!자반증이 자기면역질환인가 보네요..ㅜㅜ
    면역이랑 관련되면 장 트러블도 동시에 오나봐요..
    저희언니는 자가면역질환인 궤양성 대장염을 앓고 있는데..
    오기전이 아토피처럼 피부각질이 벗겨지는 증상이 있었거든요..ㅜㅜ
    힘든 치료 잘 이겨내고 있는 아이가 참 대단하네요!!
    • Profile Image
      정마담
      Author
      면역질환은 어떻게 합병증이 같이 올지 몰라 더 힘든거 같아요.언니분도 잘 이겨내시길 바랍니다
  • Profile Image
    cc3300v7
    아이도 고생하고 엄마도 정말 속상했겠네요.
    그래도 예후가 좋은 것 같아서 다행입니다. 힘내세요!
  • Profile Image
    지폐메이커
    자반증이란것도 있군요
    처음알았어요 좋아지길 바랄게요